Stephen Hawking once
said, “The greatest enemy of knowledge is not ignorance, but the
illusion of knowledge.” When we think we know something, we tend to
ignore evidence to the contrary and look for things to support what
we think we know. This isn't much of a problem when it comes to
things like Hawking's area of expertise, black holes. However, there
are some more commonplace subjects where the illusion of knowledge
can cause some real damage.
One particular case
that jumps to my mind is so-called miracle cures for autism. I will
say up front that there is no cure for autism, nor do I think there
ever will be one, short of a complete brain transplant. Despite this,
there is no shortage of self-proclaimed experts selling their miracle
cures over the internet, usually at great costs to their customers.
It should also be noted that the intended recipients of these
treatments are typically children, who are at greater risk of harmful
side effects.
Some miracle
treatments are relatively harmless, such as broccoli or camel's milk.
These can even be beneficial, in that they provide nutrients that
everyone needs. However, after having read about them, I'm
unconvinced that there is any benefit to be gained from either beyond
what a neuronormal person would experience.
There is one miracle
cure from the 1990's that I'd like us to keep in mind throughout the
rest of the list: auditory training. The theory was that autism is
caused by a sensitivity to certain sound frequencies. Those selling
this therapy hoped that by regularly exposing autistic people to
these often painful frequencies, the sensitivity would be overcome,
and therefore, the autism would be cured.
You may or may not
see some problems with this theory. Either way, we'll come back to it
later.
Looking back again
at current miracle cures, one of the more common is chelation.
Chelation is meant to extract harmful heavy metals, such as mercury
or lead, out of the body. Its use as a treatment for autism stems
from the belief that autism is caused by exposure to mercury from
vaccines or other sources. The problem is that there is no evidence
that autism has anything to do with heavy metals of any kind.
Further, chelation
can be dangerous. When administered properly, it can cause low blood
calcium, dehydration, and kidney damage. When it's used improperly,
including when there is no heavy metal poisoning, it can cause an
increased risk of cancer, neurodevelopmental disorders, and even
death.
If I were
experiencing obvious symptoms of heavy metal poisoning, I would
probably take my chances on chelation. However, there is no
medical or scientific reason to use chelation as a treatment for
autism. Doing so can be very dangerous.
Another
treatment that has been
under scrutiny since 2008 is a solution called Miracle Mineral
Solution (MMS). MMS is sodium chlorite dissolved in distilled water.
It's said to cure anything from colds and flus, to cancer, to HIV,
and yes, even autism.
What
its promoters do not say is that the combination of sodium chlorite
and water produces industrial-strength bleach. I shouldn't have to
tell you that even small amounts can cause some very unpleasant side
effects, up to and including death. Knowing
that, it should be common sense to stay away from it.
Other common miracle cures include CocoKefir products, which have
fallen under FDA investigation for false claims, and Epsom Salt.
We all know that Epsom Salt can be relaxing, which can benefit anyone
who lives with a lot of stress, including overwhelming sensory input.
However, long term use can have some unpleasant side effects as well,
including dizziness, heart problems, skin irritation, and muscle
weakness. I would suspect there wouldn't be a problem with periodic
use, but don't expect it to cure your child's autism.
I
should probably say something about gluten-free or casein-free diets.
There is a movement claiming
that autism is caused by gastrointestinal problems. I've seen several
studies claiming anywhere from a strong link to no link at all. I
don't know the details of most of them well enough to comment on the
accuracy, but I can say a few things.
If you have a child that is unable to properly digest certain foods,
it's obviously a good idea not to feed your child those foods,
regardless of any other diagnoses they might have. I can also imagine
the combination of autism and gluten intolerance to be a huge
problem. Imagine if your stomach is in horrible pain, and you have
little to no ability to communicate that to the person controlling
your diet.
On the other hand, if there are no apparent issues with digestion or
food allergies, it doesn't seem like there's any reason to avoid
certain foods.
I
won't talk about all of the products and therapies out there
purported to cure autism. There are simply too many to list here. If
you find one, some words
to watch out for are “miracle” and “scientific breakthrough.”
If you see those, view the report with a healthy amount of
skepticism. You should also
be suspicious of long lists of conditions the treatment is supposed
to cure. And let me
reiterate, there is no cure for autism.
So what about auditory training? It seems that for the most part,
science happened to it. For one, we know that hypersensitive hearing
and autism often go hand in hand. In this case, I think we can agree
now that we may have mistaken the symptom for the cause.
Additionally,
it's auditory training has
not been convincingly proven effective. A huge part of this is having
never been tested against a control group, partially because no
convincing placebo has been found. It's difficult to prove the
effectiveness of a treatment when you can't tell how much of the
progress came from the illusion of receiving treatment, or even how
much would naturally happen without treatment.
Before I finish, I want to say that I do understand the desperation
that some parents go through when their child is diagnosed with
autism. You're often given some very bleak predictions. You probably
only want your child to reach their full potential.
The
thing is, your child's full potential may not be less than if he/she
were neuronormal. It's probably just on a different path. I'm not
even talking necessarily about the Temple Grandins or the (possibly)
Bill Gates's of the world. Severely autistic people have proven
themselves as highly talented artists. Some have also shown more
practical skills, such as assembling IKEA
furniture.
So what kinds of therapies would I suggest? There's a few things that
have worked for me, as well as many of my autistic friends. Speech
therapy has been shown to have a positive effect. Also, many autistic
children find it easier to communicate when they have a pet to focus
on.
The
most important things, however, are to interact with and communicate
with your child as though he/she were normal, and to nurture and
encourage your child's interests, no matter how bizarre or obsessive
they may seem. You never know which path may lead to your child's
full potential. Be creative.
This is so good. Thank you.
ReplyDeleteThis is so good. Thank you.
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ReplyDelete