Sunday, September 7, 2014

An Experience Unlike Any Other - The Autism Camp

Two weeks ago, I attended what I consider to be the ultimate getaway for an autistic person. A local organization, Kind Tree – Autism Rocks, stages an annual three day camping trip on the Oregon coast. This was my fourth year in attendance, and I don't plan on missing another in the future.

There were roughly 240 people in attendance at this year's Autism Camp, including seventy volunteers. Guests include people from all sections of the autism spectrum, including self-diagnosed, as well as family members. The volunteer staff is composed of autistic people, family members, professionals, and anyone with an interest in contributing.

Once we're all there, there is no line drawn between autistic and non-autistic. The only line drawn is between guest and volunteer, and even that is mostly just when the volunteers are on duty. Two years ago, one of the board of directors of Kind Tree was told by a lifeguard at camp, “I can't tell who's autistic and who's not!” She responded by saying, “Good! That's the idea.” In my observation, even that misses the point. The real point is “Who cares?” We're all people, we're all individuals, and we're all there to have fun.

In fact, the core tenants of the Autism Camp are safety and fun. The fun requirement is filled with good food (three meals each day, and snacks available all day), music almost everywhere you go, and a schedule packed full of activities. Activities include arts & crafts, nature walks, non-competitive sports and games, swimming, and performances. If you're bored, it's because you're trying to be.

Of course, with all of the activities there are, no one is required to participate in any of them. If you want to spend the entire weekend reading or sitting in your tent, there's nothing wrong with that. In fact, some people do it that way. Again, it's all about having fun.

The safety aspect is handled a little more carefully, without being overbearing. It's mostly about presence. Of course, there are always lifeguards present at the waterfront. In addition, there is also a group of volunteers known as the vibe crew. There are always two to four of them on duty at any given time. Their job is mainly to be there and ready to help if it's needed. Otherwise, as long as everyone is being safe and having fun, they just allow people to do what they're doing, without interfering.

For an autistic person, attending this camp, whether as a guest or as a volunteer, should feel like coming home. The first time I attended was also the first time I felt like I was part of the normal population, because autistic is normal there. It was an amazing feeling that I've never felt anywhere else. The now president of Kind Tree, who is also autistic, has said of her first time that it felt like she had found her tribe.

I believe this is because autism is seen as something to celebrate. Autistic people are not required or even encouraged to hide their traits. It is a weekend to simply be yourself. A freedom that many on the spectrum do not normally have.

It has been said that everyone is autistic by the end of the event. I have noticed that the neuronormal people in attendance do tend to absorb some of the behaviors of those surrounding them. When people notice this, they usually mention how good it felt. In fact, some of the first time volunteers who have never had much exposure to the autism community come away wondering if they might even be autistic as well.

There is one specific story I would like to share. A woman who came with her teenage son publicly read a part of a book that she is writing. Her son had never known friendship when he was growing up. He had been rejected by other children his age. She said that he had grown to hate himself, and that he used to self-harm.

His first time attending the Autism Camp, she was surprised to see him hanging out and playing with other people. He had made friends. When they left, he did not continue to engage in self-harming behavior. He had grown to stop hating himself. Each year, he looks forward to seeing the friends he made at camp.

Sadly, I don't think this story is uncommon among a population that is repeatedly made to feel inferior and defective. Each year, there are people that are reluctant to leave camp because of a newfound sense of belonging and a vastly improved self-image. Each year when I leave, I am grateful that something like this exists.

If you like this idea, but you don't have anything like it near you, I strongly encourage you to create your own version of Kind Tree in your area. It doesn't even need to be big.

Kind Tree was started by two people that worked in a group home. They were disgusted by the lack of activities provided for the residents, so they decided to take some of them on a retreat for a day. As Kind Tree was able to acquire more resources, that retreat gradually grew into what it is today.

No matter what that retreat has consisted of, the biggest thing that has always made it work was that those in charge of it have always held a healthy respect for the guests as fellow human beings. There has never been any attempt to “fix” them or to alter their behavior. Instead, the Autism Camp and all other Kind Tree events are times to be yourself, no matter how weird, unusual, or silly that might be.

If you are interested in taking part or starting your own, check out www.kindtree.org.

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