Being openly
autistic, I often have people say some insulting things to me.
Occasionally, it's meant to be insulting. It's usually easy to know
what to do with that, even for the neuronormal people around me that
hear it. These days, most people know that it's inappropriate to call
someone retarded. Autistic people are likely to be personally
insulted by it, even if it isn't directed toward them.
However, a lot of
people will say things that are meant to be perfectly innocent, or
even as compliments, without realizing how insulting it might seem.
I'd like to talk about some of my favorites here. All of these have
been said to me or my friends. Please understand that I am fully
aware that none of these are meant to be insulting, but I honestly
believe the people that say them do not know what they sound like to
us.
• “You
seem so normal.”
This is probably the most common
thing that I hear when I tell someone that I'm autistic. I've never
liked this one because it implicitly defines autistic as “bad”
and normal as “good.” My goal has always been to be the best me I
can be, and it's been obvious to me for a very long time that that's
a very different path from “normal.”
• “You
seem pretty smart.”
This is another very common one.
My guess is that you don't feel the need to say this to every smart
person you talk to. Usually, the reason to say something like this is
if it comes as a surprise. Autism and intelligence are not mutually
exclusive, and very frequently coexist within a single individual.
• “You
must be very high-functioning.”
This is an unnecessary and meaningless thing to say. Just don't
bother.
• “If
you hadn't told me, I
never would have guessed.”
Most
of us have had our entire lives to learn how to navigate through
society. Passing
as normal can be an important skill, because most of us don't want to
have to explain it to every person we meet. However, it's more about
survival than a desire to be normal. Most of us would prefer not to
be complimented on it.
• “Oh,
I'm so sorry.”
You
can substitute here any expression of pity. It's
usually said much slower than anything prior to the statement that
I'm autistic. We don't want pity about autism. I can assure you that
if I felt at all ashamed of my autism, I wouldn't have said anything
about it. In fact, some of us even have some pride in our
individuality.
• “Labels
go on soup cans.”
This seems to be an attempt to
assure me that there's nothing wrong with me. The label isn't about
creating barriers or making excuses. It's an attempt to gain a
greater understanding of myself.
• “Aren't
we all just a little bit autistic?”
There's a reason we have
different labels for different things. If there were no differences,
there would be no word for the differences. Besides, when I was
growing up, I could never fully understand the actions of the people
around me. This is due to having a completely different type of
brain. I shouldn't have had this problem if everyone around me were a
little bit autistic.
• “It's
not 'autistic.' It's 'has autism.'”
To
be honest, I feel that I'm capable of deciding for myself how I'll
talk about myself. I've always preferred 'autistic' to 'has autism.'
If that seems odd to you, it's always appropriate to ask why.
• “I
heard it might be caused by ___________.”
If an autistic person cares
about this subject, chances are that they've heard it. The reality,
though, is that most of us don't concern ourselves with what causes
autism. If it isn't intended to be a discussion of autism-related
issues, please keep it to yourself.
• “Have
you tried ___________?”
Any
type of autism treatment that you might have heard of. If the person
you're talking to is an adult and has told you that they're autistic,
whatever they're doing is probably working for them. Unsolicited
advice only serves to marginalize us. Unless
you're the person's parent or hired caretaker, it's not your job to
give it.
• “You
just need to get out more.”
This isn't always as easy as it
is for a neuronormal person. Most of us tend to stay away from social
gatherings because they're tiring or overwhelming. Odds are pretty
good that you wouldn't tell someone confined to a wheelchair to just
go for a walk. We'll attend social gatherings when we're ready. Just
don't push us.
• “You
inspire me!”
Context is everything on this
one. I'm just living my life, just like you. I have challenges, just
like you, though mine might be a little different. If I do something
extraordinary, that's one thing, but I've always been uncomfortable
with my day to day life being inspirational to other people. Please
reserve admiration for when it's appropriate. Day to day living
doesn't qualify, whether the person is autistic or not.
So,
what can you say to an autistic person? The answer is a lot simpler
than
you might think. Just talk to us like we're people. If you would be
insulted by something, chances are good that we will be too.
I've heard all of those! Even though it is meant to be flattering, "You inspire me" always makes me feel a little weird. Its like saying, "If YOU can handle going to the grocery store on your own, think of how much better I could do!"
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