There's a particular
video that was sent to me, asking for my thoughts about it. It's
about an 11-year-old nonverbal autistic girl that has learned how to
type. You may have seen it, or if not this particular one, some story
like it. Here it is if you haven't seen it:
The first thing I
notice is also the most obvious. Carly Fleischmann is an intelligent
young girl, who simply had no ability to express that intelligence
for most of her life. This is a phenomenon that we're seeing a lot
these days. Many so-called “low-functioning” autistics have found
alternative ways to communicate with others, and in doing so, have
revealed an intelligence that is often above the normal range.
This story, and
others like it, are almost an embodiment of the phrase “not being
able to speak is not the same as having nothing to say.” Every one
of these people that comes to public attention has something to say.
They all appear to want it to be known that they are complete human
beings, with feelings, and want nothing more than to be able to live
a happy life. I find it heartening to see that people are listening.
I think this
phenomenon also calls into question the validity of describing these
individuals as being intellectually disabled. Carly is able to
express her thoughts clearly and articulately through typing. But I
think I can extend this point even further than that. If you're
reading this, it's likely that you know at least one autistic person,
if not several. Ask yourself, have you ever met an autistic person
that you could definitively say was less intelligent than the average
person? Or were some simply unable to express themselves enough to be
seen as intelligent people. I can't say that all completely nonverbal
individuals are highly intelligent. Only that it makes no sense to
assume that they're intellectually disabled.
Another observation
was specifically mentioned by Carly's father. He realized when she
started typing that when he used to talk about her as if she wasn't
there, that she could understand every word. This should always be
assumed. It always saddens me
to hear people talking about their family members like this, right in
front of them. No one likes
to be talked about in their presence. Even if the person does not
understand what is being said about them, it does no harm to treat
them with this kind of human dignity.
This leads to one more point that I would like to say. It's something
I see in other stories like this, as well as the differences between
“low-functioning” and “high-functioning” individuals, though
it's rarely talked about. I saw a distinct difference in how Carly
was treated by her parents before and after she started typing. Look
back at the video and see if you can see it. She was being held down
and restrained while screaming and flapping before.
Before anyone jumps on me for blaming parents, I do understand the
desire to protect her from harming herself. However, I'm not sure how
much danger there is in that happening to begin with. When I've done
things like that in the past, the best thing to do would have been to
simply leave me alone and let me calm down on my own. Trying to hold
me down and stop me from hurting myself would have only made things
worse.
Back to the video, you might have noticed that after Carly began
typing, her parents were forced to think of her as a teenage girl.
When that happened, they started treating her like a teenage girl,
and she started acting like a teenage girl. People do tend to be
products of their environment.
I have some personal experience in this area as well. I used to work
with someone who, for a solid month or two, treated me like I was
low-functioning, and made no secret of the fact that she thought of
me as Rainman. What happened was I started closing in on myself. Not
just at work, but everywhere. I felt like I was becoming more
low-functioning. I learned later that other people that had nothing
to do with my job were noticing as well. This is at odds with every
other stage in my life, when I've been treated as a functioning human
being, and I've been able to live up to that.
The final point I would like to make here is that I feel that a
person's level of functioning is much more fluid than is commonly
believed. For this reason, I feel we have little need for two terms
that I've used here: low-functioning and high-functioning. Just
remember that when you see a profoundly autistic person, remember
that there is a fully-fleshed out human being in that body, and treat
them accordingly.
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